NC Changing the Care Conversation (CTCC) is a project coordinated in partnership with the North Carolina Serious Illness Coalition, North Carolina Coalition on Aging, and the Children’s Complex Care Coalition of North Carolina. Its goals include:
- Building the coalition and grassroots power of a diverse group of family caregivers to advance state and federal policy solutions that improve support for family caregivers.
- Providing training, technical assistance, an online learning community, and funding.
We’ve created this toolkit to help partner organizations and other allies continue the advocacy work of Changing the Care Conversation for family caregivers. Using your own social media channels, you can amplify key findings, testimonials, and insights offered by project organizers and Caregiver Champions from North Carolina.
Care Conversations With Caregiver Champions
North Carolina selected 10 Caregiver Champions who attended workshops and completed training to help use their lived experience for advocacy efforts to improve policies supporting caregivers in NC. The videos shared here feature Champions highlighting a number of issues faced by caregivers across the lifespan.
Watch this montage video for a quick understanding of the conversation over this past year. Our Ten Caregivers Champions share some introductory thoughts about their roles in supporting loved ones, including some challenges they must face.
Watch More Care Conversations from Caregiver Champions
Understanding the Caregiver and the Family System
Caring for the caregiver and other immediate family members helps ensure that the larger support network is strong and ready to handle any challenges. Alicia, Amy, Brittany, Denise, Joseph, Karen A. and Renate’ explore ways programs could be developed to support the larger health of the caregiving family and community. Additional insights include how cultural competence of non-traditional families can be helpful for building trust.
A Wishlist for Improving Care and Access
Alicia, Denise, Heather, Karen A, Joseph, Karen S and Renate’ offer insights from personal experience to suggest ways to improve systems of care, from access to services, to compassionate and mindful care with each individual in mind.
Successful State and Medical Support Strategies
Caregiver champions Amy and Heather share stories of success when accessing state services and medical care.
The Value of Community Networks
It takes a village. As Brittany, Amy and Nancy share, sometimes additional services beyond direct in-home care state interventions are necessary. Expanding ones network helps fill in the gaps when resources might not be immediately available.