Resource Library

NCSI Clinical Practice Forum #7: Pediatrics in Serious Illness CareClinical PracticeThis unique forum focuses on the serious illness needs of young people with pediatrics professionals …
Caregivers and Patient Engagement Forum #1: Caregiving Research and Policies with Dr. Kate MillerCaregivers and Patient EngagementDr. Kate Miller, PhD. gave a presentation on U.S. national policies and programs designed to …
Nursing Care for Transgender PatientsClinical PracticeFor many transgender and gender nonconforming (GNC) patients, healthcare is an intimidating and inaccessible environment. …
NCSI Clinical Practice Forum #6: Ethics in Communication Regarding Serious IllnessClinical PracticeThis unique forum highlight both where and how advance practice providers are practicing in the …
NCSI Clinical Practice Forum #5: How We Care: Utilizing Advance Practice (APRN/PA) Providers for Maximum QualityClinical PracticeThis unique forum highlight both where and how advance practice providers are practicing in the …
NCSI Coalition Clinical Practice Forum #4: The Social Work Picture: Serious Illness, Quality of Care, and AdvocacyClinical PracticeOur latest Clinical Practice Forum highlights how Social Work plays a critically important role in …
NCSI Coalition Clinical Practice Forum #3: The Role of the Health Information Exchange in Supporting Interoperability, Patient Access and Quality Data Registries/ReportingClinical PracticeWatch our latest Clinical Practice Forum about the Health Information Exchange (HIE) and it serves …
NCSI Coalition Clinical Practice Forum #2: Intro to Data Analytics in Serious Illness: The Impact of Interoperability and Patient Access on Quality Serious Illness CareClinical PracticeHow can improvements in the electronic exchange of patient health information (interoperability) improve patient and …
C-TAC Webinar: The Impact of the 2020 Election on Federal Serious Illness Care PolicyCommunication, Advocacy, and EducationLegislative and regulatory experts review the likely priorities of the new Biden Administration and
NCSI Coalition Clinical Practice Forum #1: Intro to Data Analytics in Serious IllnessClinical PracticePredictive analytics in healthcare uses historical data to make predictions about the future, thereby personalizing …
POLSTAdvance Care PlanningThis website provides many resources to aid in understanding the National POLST as both a …
Evidence-Based Best Practices for Improving State-Level C-TAC ACT Index ResultsAdvance Care Planning, Communication, Advocacy, and EducationThe report from C-TAC offers a variety of specific best practices to promote ACP.Research communication-advocacy-educationresearch-study
NC Coalition on AgingCaregivers and Patient Engagement, Communication, Advocacy, and EducationOur mission as a coalition is to improve the quality of life for older adults … communication-advocacy-educationwebsite
AARP’s COVID-19 Care BookletCommunication, Advocacy, and EducationAvailable in Spanish. Designed with spaces to write down important
ACP & Advance Directives + NC General Statute Updates Webinar (Video and Notes)Advance Care Planning, Caregivers and Patient EngagementOn July 8, the NCSI Coalition, in partnership with Coalition members, hosted an educational webinar … caregivers-and-patient-engagementwebinar
NQF Issue Brief: Opportunities for Advancing Quality Measurement in Community-Based Serious Illness Care.Caregivers and Patient

Covid-19 Response Resources

National POLST Leadership Offer Guidance During COVID-19 Outbreak

National POLST leaders, which includes medical professionals and ethicists, have worked together to provide two statements relevant to the current situation:

  • Completing POLST Forms in Crisis Standards of Care
  • COVID-19 & POLST Statement

Click here for a web page that pulls together resources that can be very helpful to professionals as well as the general public.

How to talk about COVID-19 and Your Patients' Wishes Regarding Serious Illness Care

The Institute for Healthcare Improvement says, “Clinicians have been finding that patients are often relieved and grateful when given the opportunity to proactively discuss their priorities for medical care should they get sick in the future with COVID-19.”

Click here  for access to the entire article, which includes “Tips to Consider”.

COVID-19 and the Carolinas: State Responses and Federal Legislation to Address the Crisis

The NC Institute of Medicine and the SC Institute of Medicine & Public Health have issued two joint briefs regarding the impact and responses to COVID-19 in the Carolinas.

  • Click here for access to the April 2020 Issue Brief on COVID-19 and the Carolinas.
  • Click here for access to the May 2020 Issue Brief on COVID-19 and the Carolinas.

The NC Institute of Medicine (NCIOM) and the SC Institute of Medicine and Public Health have released a new issue brief on state and federal actions to address the fallout from the COVID-19 pandemic.

This serves as an update to the briefs published in April and May of 2020 and February 2021. This brief examines changes to state policies in the past month, state-level legislation allocating COVID-19 funds, successes and challenges of COVID-19 vaccine distribution, and how policies and funding allocations from the American Rescue Plan Act will impact the Carolinas.

  • Click here for access to the latest 2021 Issue Brief: COVID-19 and the Carolinas Part IV: State Responses and Federal Legislation to Address the Crisis

NQF Issue Brief: Opportunities for Advancing Quality Measurement in Community-Based Serious Illness Care.

This content in this brief reflects input from experts convened as part of the Serious Illness Quality Alignment Hub. This should prove to be a useful resource.

Click here to download this PDF.

Serious Illness Care Program’s COVID-19 Response Toolkit

Ariadne Labs has published an easy-to-use, adaptable toolkit of resources, the first version of which was published on April 3, 2020. It will be updated as the COVID-19 situation evolves. The toolkit includes the following items:

NC DHHS Resources

Updated as of: 08.02.2021

Posted on behalf of NC DHHS 8/2/2021

Sent on behalf of NC Medicaid 

UPDATE: NC Medicaid Potential Tailored Plan Members Who Selected Standard Plans

In early June, we shared that during Open Enrollment for NC Medicaid, the Department closely monitored data indicating the active selections of potential Tailored Plan beneficiaries into Standard Plans. None of these beneficiaries were auto-enrolled in a Standard Plan. Toward the end of Open Enrollment, there was an increased uptick in the number of potential Tailored Plan beneficiaries who enrolled in a Standard Plan.

  • Through June 30, approximately 7,500 potential Tailored Plan beneficiaries made an active selection to enroll in Standard Plans, plans that may not offer services they are currently receiving, have recently received or may benefit from receiving.

As noted in June, the Department determined that these beneficiaries would benefit from receiving additional choice counseling to ensure they are fully aware of the impact of the decision to leave NC Medicaid Direct and their LME/MCO to enroll in a Standard Plan — including the potential loss of services.

Standard Plan enrollment was stopped for these beneficiaries and all potential Tailored Plan beneficiaries who selected a Standard Plan. They currently remain in NC Medicaid Direct and their LME/MCO.


  • On Aug. 4, 2021, approximately 7,500 beneficiaries will be mailed an exempt notice with an enrollment packet that includes information on their option to choose NC Medicaid Direct or an NC Medicaid Managed Care Health Plan.
  • On Aug. 4, 2021, the Enrollment Broker (EB) will begin an auto-dialer campaign to inform these beneficiaries of their choices and directing them to call the EB if they would like to change to a health plan.
  • If a potential Tailored Plan beneficiary chooses to enroll in a Standard Plan, the Informed Consent process below will be executed:
    • The beneficiary can fax an enrollment form (included in the Aug. 4 mailing) to the EB. An EB specialist will call the beneficiary to provide choice counseling that includes information on the coverage of Behavioral Health I/DD and TBI services only available in NC Medicaid Direct and LME/MCOs. [If the beneficiary calls the EB directly instead of faxing the form, the same process will be followed to provide counseling by phone.] The specialist will confirm their acknowledgement of the differences between the plans and affirm their plan choice. If the beneficiary still chooses a Standard Plan, the EB specialist will document the acknowledgement in the call center system, MAXeb.
    • Aligned with NC Medicaid Transition of Care Policy requirements, potential Tailored Plan beneficiaries who elect to transition to a NC Medicaid Managed Care Health Plan will be under Transition of Care protections during this transition and will be designated as a Priority Population for care management.
    • If the EB specialist is not able to reach a beneficiary who faxed or mailed an enrollment form, after three documented outreach attempts a notice will be mailed to the beneficiary that highlights the enrollment denial and their appeal rights.

Beneficiary choice remains paramount and NC Medicaid will work to ensure that potential Tailored Plan beneficiaries fully understand their options. They will have the choice to enroll in a plan they feel best meets their needs.